Showing posts with label Lymph nodes. Show all posts
Showing posts with label Lymph nodes. Show all posts

Friday, February 12, 2010

1 leap forward, 2 steps back..Post-op


Okay, I'm trying to be positive because I was wishing, wishing, wishing that the remaining lymph nodes were clear and they are. Very pleased that it hasn't traveled further into my body. That means we caught it relatively early.

So, 1 node of 10 is positive. My sister had 8, so that gives me a benchmark. Her treatment was brutal--she is the strongest woman I know and survived but, it hurt every moment to see what she had to endure.

I thought that just one teeny, weeny, tiny, little node would mean no chemotherapy but, the doctor extinguished that hope and told me that:

1)It is still positive,
2)It still metastasized,
3)and that even though it didn't get far, she believes chemo will be in order.

Epiphany: once a lawyer, always a lawyer. I found myself bargaining with the doctor to avoid chemo. Again, I felt like I was in a movie observing myself as a third person. How many ways can Claire reframe the question until she gets the answer she wants? Believe me, I tried!! I did not get it.

We meet with the medical oncologist next week, who is the dictator of the "recipe" for further treatment. My best friend's mom Judy, who is like a second mom to me, has been incredibly helpful and supportive through this process, with an invaluable backround as an oncology nurse. She explained to me they make up a unique cocktail/recipe based on a variety of factors, not just the node. Another week of waiting....

I'm still going to do my best to learn if there are alternatives to that dreaded C. I'm still not sure that I am willing to go there. I don't know that I believe it is the true solution. I know it kills the cancer cells but, so many people I've seen go through it never have the same immune system again. I just see it as such a permanent poisoning of my entire system. But, I will listen to the oncologist with an open mind. As open as I am able. I am not ruling it out.

Again, let me emphasize that I am grateful that the cancer did not spread farther. But, I also need time to process what I call the two steps back. There is no black and white here. Shades of gray. And, I hope people can understand and respect the need to acknowledge and process the negative.

Because sometimes, things just suck. No silver lining. No false cheer. Optimism tempered by pragmatism? Who knows? Perhaps I'll be enlightened by the end of this process. Again, I cannot pretend that I am not disappointed about some of today's news. Here goes the venting:

When they did my lumpectomy, they took out margins of healthy tissue surrounding the tumor. Apparently, they have to go back in for a second surgery because there was not quite enough of a clear margin on the section of the lump where the "satellite" tumor was. So, they have to open me back up, go in and "shave off" a little more flesh. More anethesia, more surgery. Not happy about that at all. This will occur most likely in 2 weeks. Really??? All that for a centimeter and a half?

Even more annoying: this Drain is still in until at least Tuesday. I cannot teach until then. I cannot start any physical therapy on the arm that I cannot lift up beyond shoulder height until Drain is gone. I cannot wear anything that pulls over my head and my zipper/button front tops are very limited. The doctor suggested I put the Drain in a fanny pack and blouse my top out over it. Granted, she's only seen me in a hospital gown or she would know I don't own anything that would blouse out over a fanny pack. I am not buying new clothes to dress the Drain.

Also, I learned that my underarm will be permanently numb. And, they want me to wear a sleeve whenever I fly because of barometric pressure changes......not sure if that is forever too. Apparently, some nerves are "sacrificed" to take out the lymph nodes. I get to be fitted for said sleeve. Sure that will be interesting....a smartass friend sent me a website for DivaSleeves...nice.

So, back to the positive: it only spread to one node. My dear old friend Robert came by and did some healing energy work and I took a lovely peaceful nap with Jake. Todd's back and came to the appointment with me and I am very lucky to have his support. I got more amazing care packages: I am SPOILED. Love it. I now have a stuffed bunny and an angel bear watching out for me.

The Drain remains and the armpit is still hairy....maybe I can grow it long enough to do a combover if necessary down the road?

Friday, February 5, 2010

Definitely not Christmas or my Birthday



Was the wig party we attended last fall a foreshadowing? I don't think the Marilyn look is me.

I just popped some painkillers, drained the disgusting grenade-looking drain under my arm and am just sitting here devastated. Oreo is on my lap and I will go to bed very soon. Not up to talking quite yet but, figured I'd go ahead and write a little bit.

I did not expect to wake up with a drain under my arm and everything that implies. The cancer spread to the lymph nodes and that means in all probability chemotherapy and radiation. I cannot believe it. Really cannot believe it.

When I woke up, I was in excruciating pain. It felt like someone speared an ice pick through my breast. 10 out of 10 on the Pain scale. When I realized that there was a drain, I sobbed unreservedly.

Percentages are usually my friend. Statistically, there was a 10 or so percent chance that the cancer had spread to the lymph nodes. Presently, I am not enjoying being in the top 10 percent. I've always prided myself on excelling, prided myself on never doing anything halfway. I was in the top 3 percentile with my LSAT score. Top percentile in IQ, top percentiles in body fat percentage, top spelling bee in elementary school. Hell, even top percentile for some of my old sales jobs, although that was only luck.

What I wouldn’t do to be in the middle of the bell curve right now.

When I first met my friend Kirsten, we went to Cabo. We bonded and shared stories. Over many frosty margaritas. I recall telling her then that as she got to know me better, she'd see that I live life on a Big scale. No halfway. Again, I really wish that wasn't the case right now. Couldn't I have been in the 80% with a benign lump? The 90% that hadn't spread?

Yes, I am "Why Me'ing" right now. I'm sure I'll move on from that but, it is all I feel right now.

Let's see: silver lining. Digging deep here: Todd did stop and get us Mish-Mosh soup from Milton’s and it was yummy and perfect. Oreo is still on my lap and his purring is making me happy. The forecast calls for rain all weekend and I am glad. It fits.

I am sure that I will pull myself up and beat the crap out of this. But, I really wish that I just didn't have to.