Showing posts with label Neulasta. Show all posts
Showing posts with label Neulasta. Show all posts

Tuesday, March 16, 2010

OUCH......spoke a little too soon....


You know sometimes when something seems to good to be true?

I must admit that I was feeling a bit virtuous this weekend at how well I was handling my first chemotherapy. Perhaps I was even a little self-righteous. Look at me: I'm eating right, I'm doing acupuncture, I'm going on walks and I don't feel too bad. Side-effects: piece of cake. I can handle this, no problem. Laa-dee-daaa.

Well, that didn't last. Sunday evening came crashing down around my ears in the form of a big fat Bone Pain Bat over the head. Whoever named it something as innocuous as Bone Pain should be punished. Must come up with a new name.

A more accurate description: jaws of death gripping the back of the skull and pulverizing said skull into dust. Slow, inexorable crushing of the bones in a vice. Does anyone recall that scene with Joe Pesci from Goodfellas? Every single bone being crunched between pliers. Not just a "bone" but, I'm talking the back of the skull, each vertebra, every tiny bone...throughout my entire body.

Now, I do recall my sister telling me that she'd experienced Bone Pain after her chemotherapy treatments. I apparently had no clue what she meant. I've had issues with my back, neck, knees and know what it feels like for the joints to ache or grind or hurt....Naively, I assumed my sister had aches like arthritis or a headache. Silly silly me.


BONE PAIN DRAMATIZATION:
The Bone Pain gripped me in its clutches and twisted so hard that it forced me to my knees. It started with a migraine headache: that spike behind your eyes and pressure that makes it impossible to open your eyes fully. Imagine that spike extending down your neck, spearing along your collarbones and shoulder blades before inexorably creeping down to your lower back. With relentless intensity, the pressure grew. I tried shifting to different positions to avoid the pain in one area. A fleeting respite and then the pain resurfaced in a new locale. Repeat.

Can you tell I couldn't sleep Sunday? I get dramatic when I don't sleep. I threw a vicodin at the BP, who chuckled at my paltry efforts. Feeling like I'd been drawn and quartered, I had to drag myself to teach pilates yesterday morning. Luckily, my two clients are kind and forgiving and experienced. I had to have the rest of my schedule covered.

After returning from Frogs, I took a Percocet AND an Ativan because I was feeling nauseous too. Take that Bone Pain!!!! Finally, I slipped into a semi-coma for four hours and escaped the unbearable pain.

Let's just say Monday was a waste. I did learn that Claritin is often given to help counteract the effects of the Neulasta BONE PAIN. I bought some yesterday, this is getting expensive, and I'm not sure if it helped too much. Next time, I know to take the Claritin pre-Neulasta shot. I'll also go to acupuncture for the bone pain too, since it worked so well for the nausea.

Note to self: do not get pompous about how well you are handling cancer treatment. I will be prepared for Round 2. Hopefully, no more surprises. Round 2 comes with a wig..

This week I will focus on more friends, family, yoga, laughter and love to keep me floating on. And, I'm hoping to wake up in the morning sans the BP.

Friday, March 12, 2010

Apres-Chemo Day 1: so far, so good


Nothing dramatic today. Yippee. Now, I've heard that the first 24 hours aren't bad and if you are going to hit by some fatigue or pain, it starts Days 2-4. We'll see.
I'm optimistic that I'll breeze through.

I did feel a bit nauseous when I woke up and took my steroids and the E nausea drug. I skipped my usual cup of coffee for some green tea. After a shower, Todd walked me around the neighborhood for 22 minutes. It felt great to be outside in the fresh air. I still feel like a wobbly colt but, it was nice to move. So far, so good.

Then, I headed in for a session of acupuncture prior to receiving my Neulasta shot. Once again, Lois managed to calm my stomach down in a matter of minutes. She also added a needle that is supposed to help with the negative impact on the white blood cell counts from the chemo drugs. This acupuncture is going to be my saving grace.

The Neulasta shot was sharp but short. Margarita said that possible side effects of the shot include bone pain. Let's hope I skip that. I do have enough vicodin to supply a major Hollywood premiere, just in case.

More of my mundane little day: CVS to pick up my thermometer as I now need to monitor my temperature daily. If it exceeds 100.5, I need to call the doctor. Tea tree oil for my finger nails, which may change color. I'm not sure what that means. Will they turn black? or green? Hmmmm.....not promising. I prefer Mademoiselle pink by Essie. Heavy duty moisturizer to prevent the dryness and possible flakiness that may arise. Finally, Big bottle of Biotene Dry Mouth rinse because all three drugs cause dry mouth which can result in mouth sores and stomatitis. Yes, let us avoid that. Gross. Apparently, you can't get any dental work during chemotherapy treatment.

Took a nap and Todd made me get up for Walk #2. This one was about 15 minutes but, definitely a good idea. Dinner next. Leftovers from our delicious meal from last night. Marianne: you rock! I do feel a bit queasy and took another anti-nausea pill.(not related to dinner!!):)

So, saying that the day after my first chemotherapy was uneventful must be considered a success. I consider it a victory. I'm planning on getting up and going to Rescue House for my cat volunteering session. Always great therapy! Tomorrow will be fine too.

Thanks for all the great comments. You guys are keeping me lifted up on a cloud of light and love. I'm so blessed and grateful.